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"Contested Illnesses is filled with brilliant ground breaking work at the frontier of environmental health and justice. Phil Brown and his colleagues, all leaders in their fields, address the critical issues in science and sociology of the epidemic of environmental illnesses we all face. This necessary book will be essential reading for scientists, patient advocates and all those engaged in the greatest public health issues of our time."--Michael Lerner, President of Commonweal and Co-founder of the Collaborative on Health and the Environment"Contested Illnesses has elevated "community-based participatory research" to a high standard of theory and practice. The work provides a deep understanding of cultural conflicts in disease causation and sets a new path for interdisciplinary environmental research. The "Contested Illness Research Group" will be modeled whenever public interest science partners with communities to assess and improve environmental health."--Sheldon Krimsky, co-author of Genetic Justice: DNA Databanks, Criminal Investigations and Civil Liberties"The work of the Contested Illnesses Research Group draws on an unusually diverse set of theoretical traditions, and this volume does a nice job of showing how the pieces fit together. It has a coherence of voice that reflects years of collaboration." --Steven Epstein, author of Inclusion: The Politics of Difference in Medical Research

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List of Illustrations 
Acknowledgments 
List of Abbreviations

Part One. Setting the Stage: Introduction, Theory, Methods
1. Introduction: Environmental Justice and Contested Illnesses
Rachel Morello-Frosch, Phil Brown, and Stephen Zavestoski 

2. Embodied Health Movements
Phil Brown, Rachel Morello-Frosch, Stephen Zavestoski, Sabrina McCormick, Brian Mayer, Rebecca Gasior Altman, Crystal Adams, Elizabeth Hoover, and Ruth Simpson 

3. Qualitative Approaches in Environmental Health Research
Phil Brown 

4. Getting into the Field: New Approaches to Research Methods
Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski 

5. Environmental Justice and the Precautionary Principle: Air Toxics Exposures and Health Risks among Schoolchildren in Los Angeles
Rachel Morello-Frosch, Manuel Pastor, and James Sadd 

Part Two. Working in the Environmental Health Field: Ethnographic Studies
6. A Narrowing Gulf of Difference? Disputes and Discoveries in the Study of Gulf War?Related Illnesses
Phil Brown, Stephen Zavestoski, Alissa Cordner, Sabrina McCormick, Joshua Mandelbaum, Theo Luebke, and Meadow Linder 

7. The Health Politics of Asthma: Environmental Justice and Collective Illness Experience
Phil Brown, Brian Mayer, Stephen Zavestoski, Theo Luebke, Joshua Mandelbaum, Sabrina McCormick, and Mercedes Lyson 

8. Pollution Comes Home and Gets Personal: Women’s Experience of Household Chemical Exposure
Rebecca Gasior Altman, Rachel Morello-Frosch, Julia Green Brody, Ruthann A. Rudel, Phil Brown, and Mara Averick 

9. The Personal Is Scientific, the Scientific Is Political: The Public Paradigm of the Environmental Breast Cancer Movement
Sabrina McCormick, Phil Brown, Stephen Zavestoski, and Alissa Cordner 

10. School Custodians and Green Cleaners: Labor-Environmental Coalitions and Toxics Reduction
Laura Senier, Brian Mayer, Phil Brown, and Rachel Morello-Frosch 

11. Labor-Environmental Coalition Formation: Framing and the Right to Know
Brian Mayer, Phil Brown, and Rachel Morello-Frosch 

12. The Brown Superfund Research Program: A Multistakeholder Partnership Addresses Problems in Contaminated Communities
Laura Senier, Benjamin Hudson, Sarah Fort, Elizabeth Hoover, Rebecca Tillson, and Phil Brown 

Part Three. Ethical Considerations
13. Toxic Ignorance and the Right to Know: Biomonitoring Results Communication; A Survey of Scientists and Study Participants
Rachel Morello-Frosch, Julia Green Brody, Phil Brown, Rebecca Gasior Altman, Ruthann A. Rudel, Carla Perez, and Alison Cohen 

14. IRB Challenges in Community-Based Participatory Research on Human Exposure to Environmental Toxics: A Case Study
Phil Brown, Rachel Morello-Frosch, Julia Green Brody, Rebecca Gasior Altman, Ruthann A. Rudel, Laura Senier, Carla Perez, and Ruth Simpson 

15. Conclusion
Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski 

Appendix: Contested Illnesses Research Group’s Nuts and Bolts and Lessons Learned
Laura Senier, Rebecca Gasior Altman, Rachel Morello-Frosch, and Phil Brown 

References 
List of Contributors 
Index 

For additional appendixes, see www.ucpress.edu/go/contestedillnesses

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